James Davis, Upad CEO and Founder will be taking part in the 100-mile Prudential London-Surrey bike ride to support a very personal cause. His third child Abi was born with Down’s Syndrome, a genetic disorder that affects just 1 in 1,000 new born babies in the UK. As well as seeking to raise money for two Down’s Syndrome charities, James wants to raise awareness of the condition, as is it often misunderstood.
“I wanted to mark her [Abi’s] first birthday with an event I can raise money for, to help put back some of the totally amazing support and guidance my family have received over the past 12 months. I, like many others, knew very little about ‘DS’; and did the worst thing we all generally do nowadays of ‘Googling it’ when we are confronted by situations like this.
Those few initial hours, days and weeks were exceptionally tough – in terms of what could be confronting us head on, whilst we were going through a whole range of emotions – on reading what our future would now entail. It was a very difficult time in our lives where everything around Tash and I stopped for those first few days.
The support and guidance we received from DS support networks, and in particular the NHS, was thoroughly overwhelming – giving both of us the knowledge and comfort we so desperately needed; as well as the many tests to understand how Abi is affected and what support she will need immediately and in the future.
Abi has been an utter joy and pleasure to have around over the last year, who has ‘completed’ the family Tash and I have always wanted.”
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